"Shoulda Been Here Yesterday"

I just hope for you to become well soon. I stumble...

2011-09-06T23:54:23.739-04:00

I just hope for you to become well soon. I stumble on you blog and have read your condition. Good thing that you already recovered a bit from that accident.

Hello Tim, my name is Alex, and I am an 18 year ol...

2011-07-30T22:16:25.439-04:00

Hello Tim, my name is Alex, and I am an 18 year old girl living with AS, as well as other autoimmune disorders. I found your blog through someone else who is reading my blog called Alex's Roller Coaster, which is about my journey through an new cutting edge, and very expensive treatment called HiCy. With this new treatment, I will be given 4 days of extremely (I think maximum) dose of Cytoxan in hopes of getting my immune system and all my blood cell counts down to 0. This is a myeloblative or immunoblative treatment that will "reboot" my immune system in the hopes of it coming back not attacking itself. I will have to take special shots to help my counts up and the treatment will only hopefully take a couple (hopefully 2) months. If this treatment is a success I will in essence be cured and have no more signs of a disease. If you would like to please check out my blog Alex's Roller Coaster at http://www.alexcoaster.blogspot.com, Good luck with all your stuff.

Keep me posted, dude.

2011-03-03T00:17:49.509-05:00

Keep me posted, dude.

Great to hear from you after so long!

2010-11-18T21:55:53.564-05:00

Great to hear from you after so long!

Hey, found you via a Google search on AS. Nice goi...

2010-10-21T23:37:43.704-04:00

Hey, found you via a Google search on AS. Nice going! I'm 50 years old and was able to stave off the worst of AS symptoms for many, many years by staying in shape. It finally kicked me to the curb at the end of last year, so now I'm on anti-TNF drugs and figuring out how to get back into the gym regularly (man, it takes a while for my body to get moving in the moring).

I'm determined to get back to regular cycling, body building and a fully healthy lifestyle. You've already learned the trick - exercise. I can't imagine where I'd be today if I hadn't been an athlete. My docs suspect I would have been in really terrible shape.

Onward and upwards, right?

Tim Read the article in the Daily Targum Great ...

2010-10-09T12:53:53.984-04:00

Tim Read the article in the Daily Targum Great story. Congrats on getting it published. Hope all is well Jamie Boylan

I can. I will.

2010-09-09T10:59:15.745-04:00

I can. I will.

Don't get discouraged, kid. Like you said, goo...

2010-08-12T09:26:35.403-04:00

Don't get discouraged, kid.
Like you said, good work always turns head.
Things will work out!

Hi Tim I don't know you but have heard lots f...

2010-08-01T15:07:25.394-04:00

Hi Tim

I don't know you but have heard lots from your Dad. He is quite proud of you -- as very well he should be. You are an inspiration! Congrats on this past week's race and good luck in all of your ventures!

Best Wishes
Jeanine

Good luck Tim!! Tear it up out there and we will g...

2010-07-22T01:25:56.156-04:00

Good luck Tim!! Tear it up out there and we will get out and shred the gnar next week. I may also have a friend who wants to come mountainbiking with us.

You WILL do well!!! Stay as calm as you can and en...

2010-07-21T20:45:00.972-04:00

You WILL do well!!! Stay as calm as you can and enjoy the whole experience!
You Know Who

You go Tim!!! Way to show your true courage!!

2010-07-21T00:27:35.783-04:00

You go Tim!!! Way to show your true courage!!

Tim, come visit us AT Ankylosing Answers. org. It&...

2010-06-30T00:25:48.226-04:00

Tim, come visit us AT Ankylosing Answers. org. It's a site filled with questions and answers by people that have AS and a bunch of other related diseases. I've invited Meloni from AS Mom as well, and I see she's put us on her side bar.
Of course, if you're already there..."friend" me.
Mary Ellen Hubbard

So I just read your blog from beginning to end and...

2010-06-29T22:56:38.594-04:00

So I just read your blog from beginning to end and it's awsome! I am so proud of you. I had no idea that you were so into this training thing..it actually is getting me inspired! Maybe I will start running again! I will be over tomorrow so I will bring all of the info I got from Back to the Beach! I also have so many good ideas on how to raise money...we will def chat!
Cathleen

p.s. Victoria thinks a good name for your team is BUBBY'S TEAM!

Hey BUZZ...who made up that name???

2010-06-29T22:47:13.736-04:00

Hey BUZZ...who made up that name???

hey Tim, its Kevin. Me and my brother have ridden ...

2010-06-21T14:38:52.606-04:00

hey Tim, its Kevin. Me and my brother have ridden our bikes up the bike/pedestrian path along the Hudson on the west side of Manhatten. Its probably a hike for you, and its not rugged at all, but its a really good wide open ride, with good scenery. I'd imagine its a nice place to run too, it goes all the way up past the GW bridge, so its nice and long, and the ride back downtown takes some endurance.

I agree. Sweet ride, Brah!

2010-06-18T21:33:46.370-04:00

I agree.
Sweet ride, Brah!

Nice Wheels!

2010-06-17T22:05:32.092-04:00

Nice Wheels!

Nice jersey pick. I vote yes!

2010-06-11T16:43:32.075-04:00

Nice jersey pick. I vote yes!

Tell me more!

2010-06-08T21:57:59.957-04:00

Tell me more!

This is awesome! Keep it up, kid.

2010-06-01T22:19:58.372-04:00

This is awesome!
Keep it up, kid.

I will definitely let everyone know about the sess...

2010-05-31T12:48:53.272-04:00

I will definitely let everyone know about the session! As for bike work and pool work, I do swim laps and ride. In fact, mountain biking is one of the components of most every race. I have ridden the recumbent bike a few days at the YMCA and I'm working on getting a new mountain bike for competitions. I need to get back in the pool badly, as swimming is also tremendously helpful with paddling for surfing. Swimming being a huge core strength builder doesn't hurt either haha. Thanks for the suggestions, keep 'em coming!

i'm very impressed with your determination :) ...

2010-05-31T11:16:47.481-04:00

i'm very impressed with your determination :)
have you considered doing some of your training in the pool or on a bike? it would lessen the impact on your joints while increasing muscle and cardio strength so when you do run you would have better results. I would very much like to hear the outcome of your personal training session, i have shied away from scheduling anything because i am afraid of their lack of knowledge.

Thanks everyone, for all of the encouragement and ...

2010-05-30T23:57:17.978-04:00

Thanks everyone, for all of the encouragement and positive feedback! =]

So glad you are doing this for yourself and others...

2010-05-30T22:34:21.429-04:00

So glad you are doing this for yourself and others with AS. Will support you any way possible!